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The art of dying

While I was in hospital one of the nurses mentioned a patient in the mens’ ward who was 94 and had just undergone an operation very similar to mine.

It got me thinking.  This is not an insubstantial operation and, honestly, the recovery part is a bit pants.  Graft care, swallowing, washing, eating, mouth care, halitosis; general recovery from a serious dose of anaesthetic. Frankly, it’s not for the faint hearted.  So I am intrigued by why anyone who has had a good innings in life – and 94 is good innings – wants to put themselves through this for diminishing returns.  I’m not saying we should not operate on those well enough and keen enough to endure the effects.  But when does life at any cost supercede a dignified death?dignified death

Craig and I have first hand experience of this dilemma.  My father was diagnosed, at the age of 57, of non-hodgekinsons lymphoma.   He refused all treatment and marched towards death with his arms wide open and a large smile on his face.  For the last 9 months of his life we put our differences to one side and learned, for the first time, how to be father and daughter.  It was a privilege to be sitting with him throughout his final night, listening to the death rattle, watching his last breath escape from his body, knowing this was what he wanted.  He was better at death than he ever was at life.

By contrast Craig’s father suffered a huge stroke caused by a bleed at the bottom of his brain stem, when he was 82.  Overnight, he went from being a fiercely independent, fit, capable man to being a shell, initially in a hospital bed and latterly at home, where he relies on others to wash him, dress him, take him to the bathroom and attend to all his needs.  He lost his dignity when that stroke took him down, but his will to live, or will to not die, beats very strongly.

And our third personal example is my Papa, who was in his late 80’s when my Nana died.  They were inseparable and I would initially have laid bets that Papa would not be far behind.  Much to my surprise, and his chagrin, he continued to function for the next 4 years.  He cooked and cleaned for himself, and I would often find him in the kitchen trying to recreate his favourite treats from her old cookbook.  But he was lonely and he could not wait to die.  Once he confessed that he would wake in the morning and be disappointed that he was still breathing.  For him, it was not the fear of dying, he was just fed up of living.

And these examples, from the 94-year-old patient to my Papa, cause me to think about the art of dying and how I want to prepare for its eventuality.  Back in Victorian times this was a common conversation to have over tea; but somehow, with advances in medical science and our incredible National Health Service, we may have come to expect a long life as a matter of fact.  I watch my father-in-law and hear stories of older people being kept alive no matter what and I wonder at what cost to our dignity and self-respect?Budda 1

Given a choice, I would like an elegant death and at broad principle level, I’d rather a shorter life and a dignified death than a longer life requiring medical intervention or care.

Why are we not more accepting of dying as much as we are of the art of breathing?

 

 

 

 

Here we go…

Standing by the window, I watch the first streaks of orange burst through the grey sky, making grey-black silhouettes of the trees which line the edge of the car park and the world beyond.  A solitary man, head bent, runs across the empty space, rushing to get into the hospital before the wind grabs him. The birds are only now beginning to wake.  I look at the clock – an hour to go – and wonder at the hours I have already been standing, still, heart beating, head swirling, rise and fall breathing.

Last night Craig dropped me at hospital.  I ran inside – a bit like the chap in the car park – eager to move, to talk, to smile, to ‘be me’. Two hours later, after both consultants had left my room, I was in no doubt about the hours and days ahead and the associated risks.  They had taken great care to explain in detail the various elements of the procedure, the order in which things would be done and the quite substantial risks attached.  They had even used my whiteboard to draw this out.IMG_6716  No burning question had been left unanswered.  Many responses left me scared and uncertain.  There were still unknowns ahead and they could not give me definitive and accurate responses.  I signed the waiver sheets, refused the sleeping pills they had prescribed and sat down to explore.

At crux times, when I cannot control and I can only react, I have learned to watch my mind dance in the fear.  It dances like a demon, hard and fast, twirling, jumping, pointing.  Questions like “what if…”. Worries such as “what about…” Imaginings around catastrophe, disaster, disappointment are all there.  But I also know, through practice, that this is just the initial stage, and that if I listen beyond the cacophony of noise, my subconscious brings the true questions, and many of the answers.  Am I strong enough, mentally and physically, to go through this?  Yes, I am.  Can I do anything different to change the cancer and the treatment I have chosen?  No I can’t.  Do I have the right team around me?  Yes I do.

And I let my mind settle enough to practice some deep breathing.  It’s just a change, a moment in time, I am fine, I will be fine, I can do this, I can visualise my way though to the other side.  I feel the softness of the bed beneath me, the quiet ticking of the clock is soothingly repetitive.  I watch the hands go round, ticking every minute forward.  My books lie discarded.  I look at my bag, neatly packed as if ready for my flight.  I think of others, collectively and individually, and I reach for my phone.  Jill’s voice soothes me, and the meta blessings at the end of her meditation session pulls me way beyond my current situation.Budda meta blessing

“May they be safe, well, at ease, happy and content and live their lives in harmony”.  I send this out to everyone that comes to mind.

I am calm now.  I recognise I can influence no more. It is what it is, until it isn’t.  I am on the surgery train; no stopping, getting off or pulling the emergency cord.  So when the consultant surgeon pops in to say hello and to find out how I am, I respond, “I’m ready, let’s get going”.

compression socksAnd to prove that you can never be too clever, outside my door is a poster on how to put on the hospital gown.  I had studied it the night before and managed to follow all instructions completely.  So, after struggling with the compression socks and eventually managing to get them on, the theatre staff are more than amused to find me keen as mustard and as pleased as punch, all dressed up but wearing my hospital gown backwards.  Apparently the poster is for visitors who are visiting infected patients. Only it doesn’t say this.  So I get ribbed mercilessly all the way down to theatre and have to endure the anaesthetist insisting I put the thing on the right way before he knocks me out.  And, they take off my knickers.  There is no dignity left.

knickers in a tree

 

Preparations

I do not sleep much in the week ahead of my operation.  I’m not worried but there is so much to do.  It’s a bit like going on holiday when you run around so much in the days beforehand that you are too exhausted for the first few days of your holiday to really enjoy it!

Image of very tired businesswoman or student with her face on keyboard of laptop

So aside from the fact that it’s 4 weeks to Christmas and that I’ve bought and wrapped all presents and decorated the house, I have also;

  • Had my hair cut and coloured* (can’t have greys in the weeks ahead)
  • Had my eyebrows and eyelashes tinted (must look good on the operating table)
  • Bought a white board and marker pen ( no one is going to stop me from communicating)
  • IMG_1157Purchased two button through night-shirts (‘arse oot hospital goons’ are to be removed as quickly as possible)
  • Bought a small, powerful lavender aromatherapy oil and reeds (I cannot recommend this highly enough as your sense of smell heightens after this op)
  • Set up a whatsapp recovery group (I need my tribe to keep me looking forwards and outwards)
  • Seen the homeopathic Doctor and ordered all my homeopathic drugs in liquid form (any which way baby)
  • Been to the doctor and changed my HRT pills to a HRT patch (So Craig can still sleep easy each night)
  • Been to see Gina my holistic guru and practised Extra sensory tapping, meditation and chanting (Hey! It works for me)
  • Packed five bags – two for me, a small immediate bag for the first couple of nights and a larger one to be brought into hospital later.  And three for Roscoe who is off staying in various mates houses while I’m in hospital. (Won the packing queen award for organisation)
  • Written several lists for Craig (all of which he ignores)

So, given this activity, I’m as ready as I’ll ever be to go and sort out this cancer.

 

*big thanks to Kurt & Danielle Reynolds who changed packed schedules to fit me in to their hair salon ahead of the operation.