Ye’ll o’ haud yer tea

The wind is blowing a gale and it’s bitter cold.  The kind of wind that ices through the layers of jackets and thermals and touches the skin, turning it to goose- pimple blue.  Yet the sun is shining weakly as we walk along the St Andrews Jubilee golf course.  Occasionally the weather quietens, allowing us to stop and enjoy the magnificent views of sky and cloud and the old course.  It’s Christmas Eve and Roscoe is in full- flow, charm-chat mode with his Aunties, who  enjoy his exuberance, allowing Craig and I to walk and talk without having to entertain.  On the 9th we cross a style, clamber over the sand dunes and start walking back towards St Andrews town with the East Sands beach to ourselves.  It is a perfect start to our Christmas break.

We are staying with the Aunties in Cuper, Fife on the East Coast of Scotland.  Only one of us is originally from the East Coast and we get to talking about the different belief systems and language between the East and West and the North and South.  Scotland has long been a land riven by its differences rather than its similarities.  In fact history shows Scots folks unite when they have  a common enemy, so it’s jolly handy to live next door to the English.

When the Scots last ruled themselves, there were clan wars and bloodshed and alliances were made, and broken as the wind blew.  Our natural tendencies are towards socialism which is why so many of the national trade union leaders are from Scotland.  It’s a matter of belief that we should have free car parking at hospitals, free public transport for OAPs and free higher education for Scots based children but all of this costs money.  I’m struggling to see how we can balance the books if independence from Great Britain was ever on offer again.  And without the Auld enemy to unite us, would we not end up turning on each other once more?

An example of the differences between the East and West Coasters comes from my Nana Godfrey.  She was  the eldest of 14 children and only had a rudimentary education before she joined service as a cook.  She was a make-do and mend sort of girl, every item could be found to have a reusable purpose and her only luxuries in life were her weekly copy of the Peoples friend and copious amounts of hot tea. Nana had lots of friends through the Brethren church and they visited each other often.  Never would she go anywhere without a packet of biscuits or some homemade cake or jam in her hand.  It was considered impolite to not have something to offer to supplement the hosts hospitality.

By contrast, the East Coasters start from a belief system that you’re welcome to visit but you’ll already have had your sustenance.  It would rarely occur to offer a bite to eat, no matter the time of day. And if you come bearing biscuits or wine, they will be smilingly accepted and put in the cupboard for your hosts to enjoy later!!

Of course these are generalisations.  Just as any student of national culture will tell you, these traits are a guide.  Not all Italians are competitive, highly self driven and success orientated.  Just as not all Germans are highly individualistic with a preference for  direct, honest communication and not everyone in France agrees that their superiors or elders know more, can bend rules or are better than they are.

National differences create challenge, spark debate and keep us alive to our unique place in the world.  They foster small groups and tribal or clan affiliations.  National  similarities give us identity and a broader sense of belonging and pride.

As Trump charges towards the White house with his rhetoric of what it is to be American, let’s all be aware of our national stereotypical shorthand.

And back hame, we haud our tea and far mair this Christmastime, and it was grand.

 

The mugging of Father Christmas

It’s the week before Christmas and we’re in the midst of dry season so the sun has a piercing hot-heat known for turning my particular shade of Scottishness, pinky-red.

Thankfully I’m sitting under a open-sided white marquee and the breeze from Lake Victoria is most welcome.  We are located on the edge of the “sports field” in front of the manufacturing plant as I’m attending the Uganda Breweries Christmas party. Guests are made up of management and their families, and all staff, first wives and first wives children.  Uganda is still fairly polygamous and to make sure we don’t end up with half of Kampala here, HR have been quite strict in managing numbers.  Even so, the sea of children outnumber the adults at least 5 to 1.

We’ve all enjoyed the matoke, ground nut sauce and goat stew and with bellies full, we await the arrival of the Big Man himself.  (In this instance it’s not Yoweri).  After a considerable period of time and much muttering from the East African Breweries MD, a flatbed truck appears and there indeed is the star attraction.  Decked out in black welly boots, and rubber gloves,  his velour red suit tightened by his shiny black belt and his cotton-wool beard firmly attached, the bell announcing his arrival is still clanging in my ears.

He balances precariously on the back of the truck as it starts to slowly make its way around the edge of the playing field.  The children seem to appear from everywhere in that magical way that African children can – emerging from the earth in a smiling burst of humanity.  The swell of children are beginning to shout and taunt Father Christmas, they are keen to know what he is planning next. In a fit of madness, or fear, he decides to start throwing the gifts from the mound of sacks piled high on the back of his flat-bed truck.   Of course the larger, stronger children can catch and whoop, the smaller ones start to cry.  The South African MD who has stood in silent shock, galvanises and begins to try to make his way to help Santa, but he cannot get through the sea of children. Now off script and besieged by a flood of children, the flatbed truck comes to a shuddering halt and in three seconds flat Father Christmas disappears under a tidal mass.  It is chaos.  Then, almost as soon as it starts, it is over.  Father Christmas is lying on the ground, naked apart from his underpants.  Red velour suit,  gone. Welly boots, gone. Stuffed tummy and cotton beard, gone. Rubber gloves, gone. Presents, all gone.

I look to see the older children charging away with shirts untucked and full of gifts and the littlies begging them for small morsels.  The parents seem unconcerned and return to their conversations and their beers. 

The remains of Father Christmas clambers back onto the flatbed truck and it roars off in the direction of the Brewery.

I’m not sure if he’ll volunteer for the job again….

Consumption

“It is only with the heart that one can see rightly

What is essential is invisible to the eye”.

Antoine de Saint Exupery, Le Petit Prince

Walking into a red brick church today, after a frantic drive of over 200 miles, I am struck by the amount of folks filling the pews.  It’s a thanksgiving service to remember a lovely gentle man.  I listen to the eulogy, beautifully written and delivered by his daughter, Clare.

She comes to a point where she says

“For me, going for a walk with Dad was so interesting, he was always in the moment – observing everything, a flower bud, picking out a bird song, noting a smell.

Everyone knows of Dad’s passion for gardening. There was a standing joke that on any walk or visit to gardens, Dad would return with a pocket full of cuttings to grow on.  How many of you in the congregation today have plants in your garden grown from Dads cuttings?  I  have it on good authority that his Candelabra Primula reside in many a Cheshire garden”.

What a lovely way to leave your mark on the world. A soft, gentle touch which breathes on season after season.

Later, we are observing the community who have come to the wake party – there are nearly 100 people in the room – and we note that none of these folk are from his work environment.  These are Tony’s friends from his passions – nature, the great outdoors, gardening, U3A, sport.

This stays with me as I drive home. I think of all these people I’ve just left behind, who have seeds and plants growing in their gardens due to Tony’s love and passion. Plants which need this incessant rain to flourish and bloom.  The grey ‘scotch mist’ which has hung around for days, continues, occasionally turning into sleety, dirty rain drops necessitating a constant need for windscreen wipers.  The car is filthy.  The grime from the rear windscreen wiper builds up either side of the blade creating my rear window on a murky world.

So knowing I’m too late to make my evening meeting and with eyes tired from driving in the rain, I decide to break my journey.  It’s a very slight detour to Bicester village.  This used to be an outlet centre ( I know this as we used to live 6 miles away when it originally opened).  But now it’s become a consumers designer dream world, stuffed full of Bond Street type stores, all with goods at still vastly inflated prices, masquerading as bargains.  I don’t know why I thought stopping here would be a good idea.  Every time I visit now I become more depressed; by the obscene prices for big name brands, and by the gobbling tourists, arms full of crinkly cardboard bags who don’t seem to be enjoying the experience as they are so intent on grabbing the next item on offer.

On the plus side, it’s very prettily decked in Christmas lights, all twinkling in the dark, cool, night air and it has some of the very best public conveniences of any retail park I’ve ever visited. And I’ve been to a few retail parks in my time!

Empty handed and still contemplative, I’m heading homewards when right next door to Bicester village,  I spot what is quite possibly the largest ever supermarket superstore I’ve ever seen.  90,000 sq feet of retail space waiting to be explored.  Naturally, I stop and park up.  Walking inside this mecca of grocery and consumer goods, I am at once confused and overwhelmed.  I’m transported back to Kampala where, prior to Shoprite and the march of the South African supermarkets, our food choices came from the market, the grocery store in Kisimenti, or driving over the other side of town to visit Quality Cuts, the Belgian butcher serving fresh meat and cheese, European style.  Food quality is good in Kampala but in my early days there, choice was limited.  And food from the UK was rare.  I once called Craig in the office to excitedly tell him I had bought a Frey Bentos pie for tea.  This ‘delicacy’ being a rare find. Needless to say, this was a one time purchase.

So ending up in this Bicester superstore, reminds of a Christmas past, when I flew from Uganda back to ‘Blighty’. On my way to friends in Cheltenham, I stopped off at a supermarket to pick up some essential supplies.  But I left empty-handed, as I got to the cereal aisle and became so bewildered by the amount of choice, that I stood silently stupefied in front of the garishly coloured, neatly stacked boxes.  The entire aisle was cereal – both sides – stacked high.  It was just too much contrast from where I had come from.

When you spend time in places where people have very little, you learn to appreciate, and feel fortunate as well as guilty, about the vast amount that we have.  However,  having now been back in the UK for some time, and living in a very affluent and privileged part of England, I forget. Until days like today.

Today I remember, again, what’s important.  Having passions for activities and things which are meaningful for me. Taking time to show friends they are cherished.  Developing and nurturing my communities of shared interests.  Treading gently on this earth and, paying attention to the moments of learning.

Living in our world, at this time of year, it can be too easy to buy fancy presents to show people you care.  But the gift of time and genuine attention, of listening, of love, it’s priceless.

 

Wild mountain time

And we’ll all go together

to pull  wild mountain thyme

All around the blooming heather

will ye go Lassie go

We said goodbye to a close friend’s Dad last week,  He was 86 years old and had been diagnosed with terminal cancer.  By all accounts the family were pleased he was no longer in pain and he passed with his wife and two daughters by his side.

John – Craig’s Dad – is also 86, and we are conscious that this Christmas period maybe the last time that Roscoe shares with his Grandad.  It’s a poignant time – not least because John is frail and lonely, relying on daily visits from carers to wash, dress and feed him and take him to the bathroom.  He is done with this life.

But 86 is a good innings.  A lifetime’s worth of memories.  Loved ones mourn but are comforted by shared recollections of good times.

I also have friends who have tragically lost children, wives and husbands, before their time.  But, when is your time?

Back in 1996, I am training for a planned trip to Ammassalik in Greenland. ammassalikThis necessitates several visits to the Alps so as to improve my fitness and ski-touring and ice axe techniques.  I am also keen to understand and train for the threats and signs of avalanche. So we are on the Haute route ski tour, a high Alpine 120km traverse with 6,000m of ascent and descent linking two historic Alpine centres, Chamonix and Zermatt. It’s a structured route travelling Alpine hut to hut with little time for ‘ dilly-dallying’. It’s a hot day and so I take off my fleece before putting my outer gortex layer back on.  I’m carrying my rucksack with a week’s worth of provisions, largely a few pairs of clean knickers, a couple of T Shirts, my sleeping bag and mat and a bare minimum of toiletries.  I also have another pair of lightweight skis and my crampons and ice axe strapped to my pack.

hauteroute3 Tired, I am slowly zig-zagging my way across a mountain face, when I feel a cold wind.  The storm comes out of nowhere and very quickly I am confused and disoriented.  My companion is a fair distance ahead and as the storm rages, I get angry and common sense flies away.  I take my skis off, to walk my way out of the mess, and find myself up to my waist in snow. Defeated, I howl in despair and somehow the wind carries my call. He stops, looks back and retraces his steps.  30 minutes later, exhausted, I have my skis and skins back on. But my legs are no longer playing, they are shaking and struggling with the weight of my pack and with the biting wind and whipping snow.  Slowly, laboriously,  we make our way to an outcrop of rocks to hide from the wind and regroup.

By now, I am somewhat delirious and I’m repeating nursery rhymes  to try to gain some degree of control.  I know I’m becoming hypothermic, although I have little concept of the real trouble I’m in.  He does not leave me but is not talking either.  I don’t care, my own dialogue is also in my head and the unspoken is between us.  We both know this is untenable. At some point, I don’t remember how long, we hear a cry.  A man’s voice.  My companion shouts back and then he is with us.  He’s a member of the Swiss mountain rescue team that we had seen earlier in the day.  chamonixstorm-8770Thankfully when the storm came down and we did not appear, they came out to search.  After some discussion, he lifts my pack and heads off into the storm.  This time I find my voice and demand to know where he’s gone but there is no answer.  I am being pushed to my feet and ordered to get moving.  It’s a tone of voice that does not allow argument and I shuffle a few steps forward and using all my strength turn once more into the wind to zigzag upwards. Then the mountain man is back.  There is more discussion and we move on, heads bent.

I am lost in a world of Humpty Dumpty and Georgie Porgie but somehow I hear an almighty yell.  I stop and look around.  My companion is gesticulating wildly “Reverse! Reverse!!” I look down and a swirl of snow mist lifts enough for me to see my ski tips are over the edge and into nothing. I stand still, trying to work out how to go backwards.  I’m not scared. I’m not anything – in that moment I too am nothing, a tiny speck in an infinite universe. There is no fear.  Then the death scythe gets distracted and the mountain man is somehow behind me, pulling me back before setting my ski tips upwards once more.  vignettes-hut-haute-routeHe guides my every step up to the door of the hut and has obviously warned the team of what to expect.  They are on me like locusts, pulling off my wet gear, drying my hair before putting a tinfoil type hat on me.  I stand for a moment, like a compliant rag doll, before falling to the floor in an undignified heap.  They carry me upstairs to a huge log fire where I am put in a wooden chair almost on the hearth  itself.  I have a man either side of me rubbing my fingers, another two men have a foot each and they are vigorously working my toes.  Someone is behind me making my ear lobes sing.  They swap around taking turns as, rhythmically, they bring the blood back to my veins.  It happens slowly and then, with a whoosh of almighty pain, it is there, throbbing with every heart beat. I am given hot, sweet tea and they feed me sausages before cleaning my teeth and helping me to bed.  I don’t sleep – my fingers are swollen larger than the sausages I have eaten and they hurt so much that I put them in my mouth to stifle my cries.  My companion snores in the bunk bed next to mine.  The next day there is the roar of the helicopter blades and we find ourselves and our gear being airlifted down the mountain.pghm-chamonix_6

Sedated and on a drip in Chamonix hospital, I finally sleep, for three days. I am discharged on day four and that afternoon, my fingers still huge, are jammed into men’s ski gloves.  There is nothing of me exposed to the wind as I look down the mountain.  I know if I don’t push off,  my mind may not let me ski again.  So  I take a deep breath and feel the familiar burn in the thighs.  I only do one run but it’s enough to know that I can.  Even so, we never make Ammassalik as my injuries are too severe.

Yet for months afterwards I feel invincible.  Way into the summer months, the skin peels from my fingers, hands and ear lobes in great sheets.  In winter, I am shedding skin once more.  But it’s life affirming  and, although disgusting, I derive great pleasure from the scaly macabreness of it all.

Aside from the scaly skin which now reappears whenever my hands get really cold,  time thankfully steals the sharpness of memory.  It’s only when I struggle into ski boots or stand on top of particularly fierce mountains the fear grips me once more.

It was not my time then.  And – minus some tongue – it is still not my time now.  And I don’t know, like most of us, when my time will come. Our choice is surely not to put ourselves deliberately in harm’s way but to still spank the mountain when the winter breeze calls.

 

sunrise-over-vallee-blanche

The Poster ‘child’ and Poo

It is almost a year since my cancer surgery and knowing it is mouth cancer awareness month, I am chatting to my consultant surgeon at my 6 weekly consultation,  about what he does to raise awareness.  He shares some of his experiences with running free clinics and receiving ‘dogs abuse’ from Doctors who think he is scaremongering, and of the difficulties he faces getting the support required to set these up.  As part of this conversation I casually offer to support him in any of his efforts.

Less than a week later, he leaves a message on my answer phone.  BBC South are interested on doing a piece on mouth cancer and want a patients perspective.  Will I do it?  After a couple of conversations with the communications department of the Basingstoke Health Trust and a BBC producer,  I find myself in front of a TV camera.

blue-lips-mouth-cancer-awareness-1144x762Up to this point, I have been fairly quiet about my cancer.  I haven’t been deliberately hiding it, I know I need to take the time to get physically better, learn from and work through the changes that it brings and to embrace my new sense of self and identity.  I also know that I need to find a new job in the New Year  and that finding a new role is likely to be more problematic  with a recent cancer diagnosis and recovery story tagging along behind me.

So, I take time, writing this blog, going to all the various treatment and support groups, having fun, hanging out and welcoming support from my tribe of great friends while focusing on getting better.

tah-dah-1In one morning, I blow the control and management of my personal experiences right out the water.   I run starkers, out of the closet with a primal Tah Dah!!

It’s a positive and a negative being a communications expert in situations like these.  What is the message and the hook that will have people stop making tea and look at the screen? How will this message be memorable in 30 seconds?  What will make people do something different  from what they did before (i.e) stop ignoring persistent mouth and neck problems.  It is with a dawning sense of  dread, that I realise I need to show my “new” tongue and my scars to the good folks of the South of England, to wake them up to hopefully take preventative action.  And  not even my lovely Craig gets to see my tongue in private.

I am clear about my message – “It could be you” is the hook.  I want the audience to know that I don’t qualify in any of the so-called factors they say generates mouth cancer.  As cases are on the increase and more research needs to be done on the causal factors – don’t be lulled into thinking “it won’t be me”.

They edit it, of course, so the message is not so direct and I get quite cross when they find a loquacious but officious dentist in Birmingham to come on after my segment and talk about all the old traditional factors surrounding mouth cancer.  Grrr.

radio-imageBut as I have also agreed to do a live interview on Radio Berkshire the following morning, I know I have another opportunity.  Radio as a medium is very different to TV.  A verbal rather than visual hook is required to get people to stop and think.  My story becomes real when I talk about telling Roscoe, my then 11 year old son, that I have cancer.  Parents are likely to shudder at the thought of having to do this. And everyone can imagine what it would feel like, having to tell loved ones such horrible news.  Hopefully this has people booking regular visits to their dentist.

I then go  ‘live’ on Facebook  to drum up more awareness.  Not only am I now naked and out the closet, I am swinging from the door!

I shut my laptop, pack my bag and get ready to support a girlfriend with a values in action workshop.  In my handbag is a letter, the contents of which I have not shared with anyone.

It states that my recent breast mammogram results require me to have another mammogram and consultation with a doctor in 48 hours at the Royal Country Hospital in Winchester.

Shit happens doesn’t it?

star-jumpsSurely after the mouth cancer and the removal of half my thyroid, I am done for the year.  Surely it is my turn to be well after all the healthy living, breathing techniques, positive mind work, the alternative therapies, vitamins and new knowledge.  I convince myself it is nothing, they are being extra careful with me because of my recent cancer adventure.

So I waltz into the Hospital, smiling and positive, up until my left boob is being “squashed and squeezed” and the response to a casual question to the lovely radiographer, is ringing in my ears.  She is not able to tell me what is wrong, I need to see the Doctor.

I don’t think I have ever felt fear like this before.  Like a menopausal heat wave it works its way from the top of my head to the soles of my feet in a millisecond. And I can’t move as my boob is stuck in a vice!  Yup, out of the closet, Tah Dah! now really quite naked and very exposed.

radiography-image

Sent to the waiting room for 20 minutes, I decide to pop to the bathroom to do some deep breathing techniques and star jumps (quite tricky in a small space and in reality more like a hop with two wildly failing arms).  A bit puffed, I turn to face the door and see a poster all about poo.  It seems quite apt, in this moment, to be looking at various shapes of poo and what they mean.  So in the interests of sharing my new knowledge I take a picture.

image

Knowledge and a bit of levity are often the paddles you need when the shit creek appears.  And the ridiculousness of the situation, trying to do star jumps in a tiny toilet with a poo poster on the door, makes me laugh out loud.

Shortly afterwards, the Doctor shows me, on the small screen, my breast lump which thankfully turns out to be a cyst.  With the help of a sonogram and a ‘Dot-Dot’ large ‘Dot-Dot’ needle, it is aspirated and gone.  More mammograms confirm all is good and I step out on the street.

It’s been quite a 48 hours.

I head home for hugs with my boys.

Saying ‘Aaagh’

Today I went for my first ever Breast mammogram.  I am constantly amazed by how fortunate we are to have our National Health Service and for this breast screening to be free.  However, it turns out that many women do not turn up to the screening service, particularly the younger age group (the NHS is now offering screening services for a randomised group of women aged between  46 and 50).

pink breast cancer awareness ribbon
pink breast cancer awareness ribbon
This 6 minute test is undertaken by highly trained, caring and compassionate women, normally in a location where it’s easy to park. It’s so efficient I was in and out of the car-park within 30 minutes.  Breast cancer awareness is everywhere.  From Hollywood superstars, to business leaders, friends, Mums, daughters – the proliferation of pink cancer ribbons and fund-raising is huge. As is, unfortunately, the number of people we know and care about being affected by it.  Why take the risk and skip your Mammogram?  It’s 6 minutes of ‘uncomfortableness’, yet potentially  months and years of peace of mind.

So if people don’t turn up for mammograms for a cancer that is so widely known and prevalent, just consider the Herculean task of waking people up to the potential of mouth cancer.

In the UK, November is designated mouth cancer awareness month.

mouth-cancer-ribbon

Mouth cancer is on the increase;  by 39% in the UK in the last decade and by 92% since the 1970’s.  In my small friendship circle alone,  I know 3 other women who’ve experienced it and one lovely, gentle man, who has died of it. More people die from mouth cancer than cervical cancer and testicular cancer combined. Last week my dentist told me she’s just referred a 19 year old teenage boy showing all the signs of mouth cancer.

sam_0493This is not a cancer to be taken lightly.  Its effects are more visible and potentially more debilitating than many others.  Removing oral cancer, if it’s caught in time, can leave long-lasting affects on the speech and swallow function, on the function of the jaw and voice box, on neck and shoulder movement and additionally – in my case at least – a significant psychological impact created by  extensive scarring  to the mouth, neck, arm and stomach and having to learn to speak differently. img_6937 In many cases, mouth cancer survivors have to cope with developing a new self-identity.

Many of the populace – if they happen to be aware about mouth cancer at all –  figure it’s not going to happen to them.  Particularly if they don’t smoke, drink only occasionally, eat a balanced, healthy diet, have never had the HPV virus, are female, are fit and healthy and are under 50.

I was one of those people.

These factors were the reason that my dentist discounted mouth cancer for 4 months – and she is a great dentist.  Today,  as I type, a 47-year-old, fit, healthy and gorgeous woman is undergoing a 10+ hour operation because  4 different dentists misdiagnosed her mouth ulcer as being caused by a wisdom tooth.

mouth-cancer-check-2016-a4-downloadWe need to take responsibility for our own mouths.  Pay attention to ulcers which have not healed within three weeks, red and white patches in the mouth or any unusual lumps or swellings in the mouth, head and neck area.  Anything unusual in your mouth, anything that changes and stays changed for more than 3 weeks – go and see your dentist.  Specifically tell them you want to discount mouth cancer.  Put that thought in their head before they examine you so it’s in their conscious brain.

Here is what to do to check your mouth – it will take you less than a minute.  Do this in good light and pay attention to any changes

8-step-oral-cancer-screening

This picture is my mouth cancer, the day before my operation.img_6703 It doesn’t look serious does it?  But it was already a stage 2/3 cancer (I didn’t know this at the time) as it had spread into a lymph node.

As part of my monthly check up I discuss this lack of awareness with my Maxillofacial consultant surgeon.  He does all he can to raise awareness and catch people early.  He doesn’t want to sit in his consulting room, face a frightened patient and say “you’ve got cancer”.  He’d like to watch his young son play his football matches and read him bedtime stories, instead of standing in an operating room for over 12 hours conducting microscopic, intricate surgery to remove cancers that could have been treated differently if caught earlier.  His dedication is inspiring, admirable and his frustration palpable. I always know  when he pushes back his chair and runs his fingers over his head,  he’s stressed.  I’ve seen him do this enough times in the past year to know this pattern.

mouth cancer risk factors
mouth cancer risk factors
So many people have asked me, what causes mouth cancer.  The official line is smoking increases your chances as does heavy drinking.  If you’re overweight, eat rubbish, don’t exercise, have the HPV virus, are over 50 and male, you’re much more likely to be in the target zone.

But given none of this applies to me, I’m left with seeking different answers.  So here is my theory, based on my extensive reading and research over the last year.  In addition to the list above, pay attention if you are:

  • Stressed, and have been stressed for a long period of time;
  • Heading towards burnout (including feeling irritable, unpredictable, isolated, frustrated, confrontational, irrational, incoherent, always tired, eating or drinking more);
  • Hold, or have held, a mobile phone to your face and ear for over 20 minutes for long periods of time;
  • Grow up in a household with parents who are heavy smokers;
  • Spend, or spent time in, smoky atmospheres even though you have never smoked yourself.

Make a date with your mouth each week. Consider this to be an essential part of your personal insurance policy for the years ahead. 

May  you, and your loved ones, live long, happy, healthy, productive, cancer-free lives.

And may Mike get to spend more time with Henry.

family-playing-football-beach-summer-day-38192616

 

 

 

 

 

 

Just who do we think we are?

I once worked for a publicly listed company  which had a very charismatic and passionate CEO who founded the company.  As a result, he set the moral compass and values of the organisation.  And while this resulted in a period of success and market change, the far-reaching impact was many lived in fear and forgot about truth and honesty.  So when big decisions came to invest in a more risky and global enterprise, it was the CEO and the ever voracious appetite of shareholders which resulted in what became a catastrophic over reaching  of capacity and capability.  At the time when we most needed an effective Chairman and Board to ask calm and collected questions and balance the power of the CEO, they were effectively sidelined by his single-minded vision for the future.

Today as a nation, we teeter on the edge of a similar story.

blog-magna-cartaThe structure of governance in our country has developed since the  Magna Carta, to create balance and fair challenge and to protect our democracy and rule of law.  Our  (un-codified) constitution defines how we govern our democracy and sets out the way in which our country will be run.  It ensures power is balanced and limited, to safeguard and protect the rights and freedoms of the citizens of our country and it does this by giving three main bodies constitutional power:

1.  The Executive (Government)

2. Legislature (Parliament)

3. Judiciary (judges)

By separating these three bodies they provide a check on each other, ensuring power is not concentrated on any one area.

I share this because I’m struggling to understand the vehemence of some of the news headlines and media reports, and by the dangerous rhetoric espoused by some un-elected spokespeople, as a result of the decision taken by the Judiciary last Thursday about who has the power to trigger Article 50 and the exit of the UK from the European Union.

This decision was founded in our constitution – the Government cannot take away the rights of all of its people (those who voted in, or out, or who did not, or could not, vote at all) by issuing an Executive decree.  blog-conservative-leader-theresa-may-addresses-party-conference-612810942-57f4f2e5c5b99So when Teresa May told the Conservative party at their annual jamboree in September that she would trigger article 50 by March 2017 – the Judiciary have decided she was breaching the limits of her power.

As UK citizens, we elect our members of Parliament to act and make decisions on our behalf.  Their role is to represent us and their political party by participating in debates and voting on legislation and other matters. We cede our control of decisions to our elected MPs.  Our rights (including are we in or out of the European Union) can only be taken away by an Act of Parliament, voted for by our MPs  and this is why the Judiciary have ruled that the Government alone cannot invoke Article 50 to trigger our exit from the European Union.

In the context of Brexit, much as though it was lovely to have our say, it was never legally binding as constitutionally we don’t recognise the opinions of individuals.  the-great-thing-about-democracy-1-quoteOur current democratic principles mean we have given the right to make these decisions to our elected Members of Parliament.

But this is not how some sections of the media are reporting this.  There have been personal attacks on individual judges, a bullying Governmental line, an ineffectual and embarrassing Lord Chancellor, Liz Truss, who took over 24 hours to defend the constitution and Judiciary (and whose defence was less than weak) and a general lack of understanding of democratic governance in our country.

So what kind of democracy do we want?

Let’s look at our choices.  We can have a smaller, national democracy focused solely on the rights of all UK citizens.  We can have a larger, more international democracy focused on the rights of a broader population such as Europe.  We can have no democracy at all and instead go for a, hopefully benign, dictatorship.  There is no such thing as a perfect democracy.  No one size fits all.  Look around the world – each nation-state has its pluses and minuses in how it chooses to govern  and enact their rules of law.  However, the point is that it is impossible to give voice to each individual, and on every decision; for society to function, we need to place the responsibility to make and implement decisions for the many in the few.  That’s a big responsibility, both for those passing it on, and those receiving it.  And that’s why the independence of the judiciary is so important.

And to get an idea of what those choices may be, we need look no further than our American allies and their codified constitution, where possibly they are facing an even bigger catastrophe about their national identity and how they see themselves.  Voters there have a choice between the rock and the hard place. quote-the-difference-between-a-democracy-and-a-dictatorship-is-that-in-a-democracy-you-vote-first-and-charles-bukowski-26894 But plainly there is one vote that will uphold their existing constitution and rule of law, even if she is feathering her own nest at the same time, and one who has clearly, unequivocally stated he will operate largely as a dictator and ignore any checks and balances on his power and decision making process.  I’m not even sure I would describe Trump as benign.

So let’s not sleepwalk into complacency.  We have a Parliamentary democracy, which operates with the governance of the Executive and Judiciary to balance out its power for very good reason.

blog-justice-and-democracyNo matter how you voted in the European referendum, there are broader questions to be considered.  Who do you believe has the right to make decisions on your behalf?  What kind of check and balance do you want on how much they can decide on?  What should you be able to do and say should they make decisions you don’t agree with?

For while it’s true that no one thing should ever be always remaining just how it is, surely in terms of how we democratically make laws and decisions, to undermine a system that has developed over hundred’s of years, and is modelled throughout the world, can only lead to a less democratic and fair society.

So let’s pause. Let’s consider the impact on all of us, of this continuous drip feed of negativity and challenge. How much more fearful do we become? How much do we step away from our heritage and ways of governance into a pseudo democracy where we cede decision-making control into the hands of newspaper barons and those who shout the loudest.

Be careful of what we wish for. Before it’s too late.

arthurmiller106419

 

Fakery

During an unusual spot of Motherly baking today, I burn my arm.  While I’m calmly reaching up for the burn cream, fetching the first aid kit from the bathroom and applying the dressing with one hand, Roscoe enquires, while sitting on a chair,  if I’m okay.  mother-and-cook-book“Well, I’ve just burned my arm on the oven door”.  His response?  “Again? That’s just careless”.    During my suppressed, and combined, snorts of hurt and irritation, it strikes me that once more I am faking it.  That what I’d really like to do is run, banshee-style, round the kitchen while waving my reddening arm and screaming rude words, at decibels so loud the neighbours can hear.

It makes me laugh to consider how I’ve used fakery in daily life.   Lots of us have Facebook lives, the ones where our personal brand takes on an idealised hue.  In my case I tend to post photographs of when we’re on holiday, when Roscoe is either acting goofy, looking handsome or lovingly at his adoring Mother. dsc_2981 Or the occasions where Craig is laughing so uninhibitedly free,  I can hear it through the image.  Sometimes I post photographs of friends and cocktails or shots, or friends with cocktails and shots.  The point is if you were trying to figure out who I am and what I’m like by looking at my Facebook posts,  you would think I was always travelling, exploring, having fun.  And yes, I do experience all of this but real life is not as colourful or varied or exciting as my Facebook posts would have you believe.

gerber-babyI have a girlfriend who occasionally sends photos of her intensely cute newborn son.  Her response to the comment of “he’s always such a smiley baby” is to remind us that she’s hardly likely to be posting photos of him screaming and looking like a demented demon child.  And boy is this the truth.  Although, I must confess to laughing inside when everybody would look at a newborn Roscoe and say “ooh, he’s so beautiful”   – particularly as both parties knew he was a shockingly ugly baby.  Fakery in these wacky hormonal situations, is probably the safest option.  Thankfully by 3 months, he was a stunning, if noisy, cherub, so much so that we were once tailed in New York by a bloke who believed that Roscoe was the real-life Gerber baby.

And then I think about my trips to the hairdresser.  Okay, so he displays all the physique, muscles and charm of his other job, as a professional ice hockey player, but why do I need to put on makeup before I go?  I don’t remotely harbour any nefarious thoughts about him but my vanity and ego will not let me turn up “Au natural”.  Especially as once he’s cut and fiddled with my hair and then dried it to perfection, it  doesn’t match the ageing face unless there is a previously applied smidge of lipstick and a wand waft of mascara.

Then there are the visits to the cancer consultant.  Where I’m so intent on being the best patient, the one he smiles benignly at because I’m making such good progress, that I forget to tell him about the jaw pain and the scar tissue battle and the fizzy tongue.

And when I’m in professional situations,  I sometimes pretend to be something I’m not feeling at the time.   When I’ve a head full of cotton wool and a mouth to match, I’m up extra early to carefully apply the face paint, to make last-minute changes to the outfit planned and  to work through the witty one liners to “gosh, you’re looking really good”  My favoured response is “thanks, its amazing what a spot of cancer can do to a person”.  I have sat in meetings feeling rising panic, when nothing said seems to make any sense.  I have belly breathed through prolonged senior level bullying with personal attacks on my core identity, not on the job I’m doing, and still managed to act with integrity and remain professional.  I’ve held it together when the task ahead seems impossible and my team need me to provide direction, when inwardly, in that moment, I have no clue but my unshakeable belief that together, we will make it work.   I have walked into meetings not knowing what I’m going to say but open my mouth to sound credible and articulate.  I’ve used face paint and office wear like a suit of armour and act it out.  And it works.  Because in truth,  very few take the time to look beyond the superficial.  We are all caught up in busy lives, 30 second snapshots, caught in our beliefs and unconscious bias’ which filter our thoughts and vision.    I know, if you can act confident, sound confident, look confident, you will end up being confident.  It’s afterwards you can be surprised and shocked at what you’ve achieved.

2016 is the year where I have honed my ability to pretend.  Outwardly all can be sorted, while inside I am ripped and dripping in angst and fear so rich I can taste it.  The consultant call to the beach, to tell me the biopsy was not good news, and after a 10 week wait, waking to the inevitability of my right thyroid gone, tested my resolve but loosened my vanity.  What’s another neck scar to add to the collection?! img_0754 It’s become farcical to worry about something so trivial.  And besides I now know how to fake looking well.  Nothing that a scarf , a spot of war paint and some flicky hair can’t sort.

The gift of my cancer is to have given me time to cast my eye inward. To explore who and what I am and what I stand for.  And it turns out that this is now where the real challenges lie.

Loving and believing and trusting in myself so I no longer need to pretend.

final-quote-for-fakery

 

Living in the light

I know we Brits are obsessed about the weather but frankly if you lived in this small, increasingly inward and parochial island, you would become obsessed with the weather too.

I grew up in the very North of our little island.  In a town of 8000 inhabitants, beyond half way to nowhere.  Wick is the county town of Caithness. Caithness is the final county in Scotland before you drop off the top into the cold North Sea.  Its claim to fame includes the old Queen Mothers favourite holiday destination, the Castle of Mey;  Ackergill Towers beloved of celebrities wanting to be Scottish for the weekend;  a nearly decommissioned nuclear fast reactor, Dounreay, along with its harbouring of the most northerly point in the UK – Duncansby Head, which can be found just a couple of miles away from the most northerly staging point of the United Kingdom,  John O’Groats.

The county of Caithness is a bleak, flat landscape, bereft of the average amount of sunshine that an average person in the UK would consider to be normal. dunnet-bay-beach On its wild, windswept and deserted golden sandy beaches often the only sound is the sea thundering in and the seagulls crying overhead.

As a teenager I enrolled as an Auxiliary Coastguard, the perfect job for someone happy to stare out of the window at the wilds of the Pentland Firth, recording the ships passing and coordinating any activity which may necessitate calling out the lifeboat crew.  Often, the walk to the coastguard station for my 6 hour shift was an almighty battle against the elements.  Back then, as a mere slip of a girl,  I experienced being lifted right off my feet by ferocious winds, hail battering my face, as bent double I inched forward.  The coastguard station, located right on the promontory of sea and cliff, could be a 20 minute, or one hour, walk depending on the vagaries of the weather.  60 footwaves-in-wick-harbour high sea waves hitting the harbour wall was a regular occurrence as was losing fishermen to the wild seas.  The favoured way of committing suicide was driving down the hill straight into the harbour or jumping off one of the many cliffs along the coastline.  Living and surviving in Caithness requires a resilience of soul and spirit and a propensity to live in semi grey darkness for at least half the year.

So its fair to say that for many reasons I never fitted in and the day after 6th form ended, I was on a train south, never looking back and rarely returning.

This experience of bleakness seeped into my heart and so I often find the transition from summer nights to autumnal days and the promise of a dark winter to be challenging for my soul.  Over the years I have researched the Seasonal Affective Disorder condition and looked at the many products on the market, which if you sit under them for a period of time, is supposed to mimic proper daylight.  I’ve yet to invest in one of these lights but as time marches on, I’m sure to finish my research, put my hand in my pocket and purchase one to help ‘happify’ my being.

As a result,  I am slightly obsessed by light and big skies.  It’s one of the many reasons that I fell in love with Africa.  The light is often cited by friends who have bought homes in places like Spain where even in the Winter the light is clean and cold and clear. I’m always up  for a visit, particularly in the Winter months.  In fact I have ‘missing light’ conversations a lot during Winter and the promise of sunshine in the Alps means that come November we are always looking at ski holiday details to get us over the hump of another grey and cloudy day, week or month.

A couple of years ago my baby brother got married in Wick, necessitating a trip “up north” with Craig and Roscoe, as slightly wary travelling companions.  (Craig loves to tell folks that the first person he ever saw in Wick was a man taking his Ferret for a walk using a small dog lead).   It had been 10 years plus since I was last in the town and aside from the addition of a roundabout and the inclusion of some well known High Street Stores, not a lot has changed.  It was Easter so the promise of some increased light with the clock changing was upon us and the vast expanse of sky and sea made for a compelling view.  john-ogroats-1007929_960_720We took a drive up to ‘Groats for the obligatory photograph under the white mileage sign, on a day where the watery sun was teasing us with promise.  We fell in love with the wild peace of the place and made the decision to debunk from the tiny, functional rooms of the Norseman hotel to a two bed apartment owned by Natural Retreats, right on the coast of the Pentland Firth.  The sun stayed with us for two days and I eventually saw the light which had so bewitched my parents.  In the sunshine, the coastline and scenery is spectacular, pinky, blue-grey sky stretching curved to the ends of the earth, using the sea as a springboard for light so entrancing I lost hours.pinky-grey-sky-wick

Two days is enough to have the men of the County taking to the streets in their short sleeves while we remain huddled in our down jackets, hats and scarves.  Two days is enough to fool me into a false sense of love and belonging.  Day three reality crashes in with the windows being battered by rain, hail and wind, the haar-mist rolling through so that watching the seals frolic in the sea outside is but a memory.

We saw out the week, a lot from the inside.  Our last day in Caithness saw the sun come out again but this time I was not fooled.  I took my family and my happy heart south.

I belong with the light.

tree-on-walk-from-millgreen

In sickness and in health

Craig and I often spend time apart – either because of work, family commitments or social engagements with friends.  For us, this is healthy, it lets us have space from each other while at the same time acting as a reminder of why we have chosen to spend our lives together.  And much as though I miss him, I look forward to these brief breaks.  So when he said he wanted to go to Scotland for a few days to see his Dad and spend some time with his old buddies, I readily agreed we should make this happen, despite, and because of, my recent surgery.

img_8734As during the past twelve months, with the exception of the inevitable work commitments, he has been at my side.  And at the same time, he has changed his job to a much higher profile role, lost his Mother and has been caught in the middle of a protracted and messy long-term sibling disagreement.  It’s no exaggeration to state his tenacity and commitment has been something of an inspiration for my recovery.

We don’t often speak of the toll on loved ones of a cancer diagnosis.  Personally, I feel it has been far harder on Craig than on me.  I see this sometimes when I catch him, unawares,  just watching me, or ‘spotifying’ our past summer holiday tunes, cooking incredibly tasty soups and stews to encourage me to eat when I’m suffering from the recurrent mouth ulcers or when he’s forgetfully wandering in and out of rooms. img_8285He has always told me daily that he loves me but now he says it with an intensity that I have no doubt of my responsibility for doing all I can to get better.  He regularly reassures me that he still finds me attractive, particularly during those days when I find my scars to be hideous or my skin-heavy tongue to be troublesome.  He encourages my forays into alternative and holistic healing, in-spite of any personal doubts.  He listens hard to my misshapen sounds and tunes out to my now atrocious singing, game fully joining in when the screeching gets too loud.  He laughs with me, and at me, when I’m being ridiculous.  He plans surprises big and small to keep me looking forward, supports my need to write this blog, sometimes correcting my grammar but often just letting it go to free my voice. He has gone from sleeping the sleep of the dead to waking at every sound and now seems incapable of sleeping any longer than 6 hours a night.  He  juggles his work commitments to accompany me to every hospital appointment and consultant review and apart from my banning him from coming to the intensive care ward, has been by my side every hospital day while pasting on his brave face for Roscoe every evening.  I don’t know how he managed to get through the day of my 12 hour surgery and emerge still sane.  I do know from the increasing amount of grey hairs on his head and, worry lines on his face, that my diagnosis and on-going recovery has been incredibly tough on him.

craig-and-laura-lovely-photo-2-jpg

From a change perspective I am curious to know how he manages and chose my moments to ask.  It turns out he likes some rituals – like putting on the washing, organising clothing into piles of colour and texture and measuring out the soap powder (he has a mistaken belief that I have always used too much)  He finds cooking to be relaxing (washing and tidying up afterwards, less so).  He needs to get out of the house regularly otherwise he suffers from cabin fever.  Watching any kind of sport on TV is a form of escapism.  He understandably seeks more predictability and organisation than we have experienced in the past.  He needs us to take regular breaks away from home as a means of forgetting, for the moment, where we are and what we are facing.

And if I had to do it over again (and I ask the Universe to ensure this is never the case), what would I ask him to do differently?  I would ask him to get more organised support, I would insist on a therapist or counsellor for him to talk to – not because I think he needs therapy but to have someone to be brutally honest with, to not need to put on the game face but just express his  deepest fears and emotions  as a form of catharsis on the body.  I would encourage more fitness, of any sort, to help with his cortisol and adrenal levels.  I would make him take omega 3 good quality fish oil for his amygdala health and well-being.  I would ensure that his buddies invite him out more for blokey, manly activities;  golf, squash, poker, classic car gazing, banger racing – whatever men do – as unlike me he internalises and finds it hard to ask for support. img_9564 I would restrict the alcohol levels and insist on far less meat and far more vegetables, not just as a side dish but as a main meal.  I would encourage him to have more “me” time, re-join the golf club for example, and to spend more time with his mates, away from home stresses.  I would shout louder for him, for help, support and care.  I would have him go to facials and back massages so he would relax and enjoy more pampering. In short, unless he feels cared for, how can he give so much of himself without he himself becoming depleted and sick?

And now, while I have just loved my most amazing girly weekend, he has enjoyed some much-needed down time with his buddies.

So all hail  some time away from the vows, commitments and promises that we make and keep.

As we continue to live “till death us do part” with our eyes wide open and our hearts full of love.

blog-two_left_hands_forming_a_heart_shape-2

For those curious about change