Category Archives: Life change

Change stories, ideas and experiences created by new circumstances

Magic moments

Imagine, just for a moment, you are Brian Cullinan, chairman of PwC’s US Board and Managing Partner of PwC’s Southern California, Arizona and Nevada Market.  You’ve played a part in a really successful evening; a slight blip when the production team included a picture of a still-living producer in its ‘in-memoriam’ segment but, aside from this, everything has flowed and gone to plan, just as in rehearsals.  You are beginning to relax.  Fourth year in, you recognise the climactic moments of the show are beginning to unfold.  Its 21.03 PT and Warren Beatty strolls to the podium, opens the envelope you’ve just given him, looks confused, shows his consort and gives a half laugh.  Faye Dunaway’s response is to blurt out a complete fabrication, information which is not written on the card that Beatty is holding.

Credit: Phil McCarten/AMPAS

Beatty looks dumbfounded.   Neither of them have asked for clarification, they are both in full acting mode  This is not what the card says.  He knows it, you know it, Faye Dunaway knows it and your colleague, Martha Ruiz knows it.  For 30 seconds you are the only people in a  live, world-wide, televised show who know the information just shared is wrong.  Time stands still.   Your blood pressure is rising, your heart rate has increased, the palms of your hands are suddenly sweaty, you’re feeling sick, your mouth is dry, your back and shoulder muscles are tense,  you’re beginning to tremble, you want to run to the bathroom.  Your fight, flight or freeze responses have all gone into hyper-drive.  This is stress.  This is anxiety.  The wrong people are showing up on stage, yes you did hear it right.  Years of  studying, training, hard graft, years of audit, M&A and leadership experience are thrown up in the air.  You look at the envelope in your hand and the envelope in Beatty’s hand and slowly your pre-frontal cortex starts to kick in; you’ve passed on the wrong information. You’ve given Beatty the wrong envelope.  And the western world is watching the resulting chaos in real-time.

10 hours later, you haven’t really slept.  You’ve helped craft the company statement, taken full responsibility, talked it over and over and over again.  In fact, you’ve re-lived and continue to re-live the process.  You are keenly aware that protocols were not followed fast enough, corrections not made quickly enough.  Beatty is talking to the press a-plenty; Dunaway has run-away  and does not seem to be taking any responsibility.   Your personal credibility and the company reputation is on the line.  Pictures of you tweeting back stage are all over the web.  You know, more than anyone, just how serious this is from a brand and reputation perspective.   The company is still standing by you and then,  the client, the AMPAS president, Cheryl Boone Issacs, tells the Associated Press  that you and  Ruiz have been fired and will not participate in future shows. You are shattered.

Just how does this statement and action affect the perception of the Academy of Motion Picture Arts and Sciences?   I look up the Glass door reviews for AMPAS for some insight and based on the employee ratings and comments, this action is consistent with the current leadership culture.  Reading these unedited employee comments, it comes as no surprise that the President is now reviewing the entire relationship with PwC.   A much more powerful leadership stance could have been created by a statement along the lines of:

We accept PwCs apology for the grave error that was made during Sunday’s show and are working with them to learn from this and ensure this will not be repeated.  We respect our 83-year long relationship and look forward to working together to continuously improve the processes and procedures which make the OSCARS the annual best award celebration in our industry.

Just imagine what potential employees would think if they saw such a statement; how great talent would be attracted to a career in AMPAS, people who could see they could contribute and enhance the organisation.  Imagine how existing employees would feel to read this, how many more ideas and innovations and contributions would be put forward.   Instead, the opportunity is missed, the opinions of the existing employees are reinforced and the current culture is laid bare for the world to see.    Because, when you boil it down, no one died or was hurt in the process, perhaps with the exception of pride and ego.  And perhaps the person who is most diminished by this situation is AMPAS President, Cheryl Boone-Isaacs.

By shooting those who make the mistakes, the learnings are lost and the opportunity to build loyalty and respect are gone.   Trust is built in such moments.  Moments like these are where magic happens, where people move forward and perform at their best because they know they have support  and encouragement to learn and grow.

Satya  Nadella, Microsoft CEO, knows about building these moments,  of leading and engaging teams who are trying their very best.

A year ago Microsoft developed an AI Twitter bot by the name of Tay (officially, Tay.ai).  to communicate and learn from the millennial generation.  Very quickly this turned into a disastrous attempt to advance how artificial intelligence communicates with humans in real-time.  Hackers and others were able to transform Tay into a racist, profane-spewing cyber-bot and the results took Twitter by storm.  This had great potential to damage the Microsoft brand reputation.  But they acted quickly and in less than a day the programme was removed and an official apology was issued by Peter LeeCorporate Vice President, Microsoft Research .  This was a great apology.  Perhaps a little over long but it clearly explained this was cutting edge, innovative work and they were going to take their experiences and build on their lessons learned.

So now imagine you are one of the Tay team, you’ve worked years on this, giving up evenings and weekends with loved ones because this is a genuinely exciting, cutting edge project.  You really believed in the opportunity, you know that a similar programme in China,  the XiaoIce chatbot is being  enjoyed by some 40 million people so you are devastated when Tay is hacked and her potential is destroyed. And you’re really upset that she has not worked the way you hoped and may have caused some people great distress.   Then you get an email from your CEO and it says ,

“Keep pushing, and know that I am with you … (The) key is to keep learning and improving.”

Wow!  How amazing!  So what are you going to do next?  How can you take what you’ve learned from working on Tay, and what subsequently happened to her  and create something better, even more exciting and more life changing?

Perhaps if we purposefully choose to not operate in a culture of fear, blame and litigation, and chose instead to work with companies   where we  acknowledge and learn from mistakes, or potential mistakes, without fear, blame or recrimination;  organisations where it’s regarded as the norm to co-create concepts and ideas with others without being undermined or threatened;  places where we really listen to and give learning feedback to others so we all develop and grow,  perhaps then we create lasting extraordinary opportunities and a better place for all.

Image: Flickr user Ed Schipul
 

Ye’ll o’ haud yer tea

The wind is blowing a gale and it’s bitter cold.  The kind of wind that ices through the layers of jackets and thermals and touches the skin, turning it to goose- pimple blue.  Yet the sun is shining weakly as we walk along the St Andrews Jubilee golf course.  Occasionally the weather quietens, allowing us to stop and enjoy the magnificent views of sky and cloud and the old course.  It’s Christmas Eve and Roscoe is in full- flow, charm-chat mode with his Aunties, who  enjoy his exuberance, allowing Craig and I to walk and talk without having to entertain.  On the 9th we cross a style, clamber over the sand dunes and start walking back towards St Andrews town with the East Sands beach to ourselves.  It is a perfect start to our Christmas break.

We are staying with the Aunties in Cuper, Fife on the East Coast of Scotland.  Only one of us is originally from the East Coast and we get to talking about the different belief systems and language between the East and West and the North and South.  Scotland has long been a land riven by its differences rather than its similarities.  In fact history shows Scots folks unite when they have  a common enemy, so it’s jolly handy to live next door to the English.

When the Scots last ruled themselves, there were clan wars and bloodshed and alliances were made, and broken as the wind blew.  Our natural tendencies are towards socialism which is why so many of the national trade union leaders are from Scotland.  It’s a matter of belief that we should have free car parking at hospitals, free public transport for OAPs and free higher education for Scots based children but all of this costs money.  I’m struggling to see how we can balance the books if independence from Great Britain was ever on offer again.  And without the Auld enemy to unite us, would we not end up turning on each other once more?

An example of the differences between the East and West Coasters comes from my Nana Godfrey.  She was  the eldest of 14 children and only had a rudimentary education before she joined service as a cook.  She was a make-do and mend sort of girl, every item could be found to have a reusable purpose and her only luxuries in life were her weekly copy of the Peoples friend and copious amounts of hot tea. Nana had lots of friends through the Brethren church and they visited each other often.  Never would she go anywhere without a packet of biscuits or some homemade cake or jam in her hand.  It was considered impolite to not have something to offer to supplement the hosts hospitality.

By contrast, the East Coasters start from a belief system that you’re welcome to visit but you’ll already have had your sustenance.  It would rarely occur to offer a bite to eat, no matter the time of day. And if you come bearing biscuits or wine, they will be smilingly accepted and put in the cupboard for your hosts to enjoy later!!

Of course these are generalisations.  Just as any student of national culture will tell you, these traits are a guide.  Not all Italians are competitive, highly self driven and success orientated.  Just as not all Germans are highly individualistic with a preference for  direct, honest communication and not everyone in France agrees that their superiors or elders know more, can bend rules or are better than they are.

National differences create challenge, spark debate and keep us alive to our unique place in the world.  They foster small groups and tribal or clan affiliations.  National  similarities give us identity and a broader sense of belonging and pride.

As Trump charges towards the White house with his rhetoric of what it is to be American, let’s all be aware of our national stereotypical shorthand.

And back hame, we haud our tea and far mair this Christmastime, and it was grand.

 

Consumption

“It is only with the heart that one can see rightly

What is essential is invisible to the eye”.

Antoine de Saint Exupery, Le Petit Prince

Walking into a red brick church today, after a frantic drive of over 200 miles, I am struck by the amount of folks filling the pews.  It’s a thanksgiving service to remember a lovely gentle man.  I listen to the eulogy, beautifully written and delivered by his daughter, Clare.

She comes to a point where she says

“For me, going for a walk with Dad was so interesting, he was always in the moment – observing everything, a flower bud, picking out a bird song, noting a smell.

Everyone knows of Dad’s passion for gardening. There was a standing joke that on any walk or visit to gardens, Dad would return with a pocket full of cuttings to grow on.  How many of you in the congregation today have plants in your garden grown from Dads cuttings?  I  have it on good authority that his Candelabra Primula reside in many a Cheshire garden”.

What a lovely way to leave your mark on the world. A soft, gentle touch which breathes on season after season.

Later, we are observing the community who have come to the wake party – there are nearly 100 people in the room – and we note that none of these folk are from his work environment.  These are Tony’s friends from his passions – nature, the great outdoors, gardening, U3A, sport.

This stays with me as I drive home. I think of all these people I’ve just left behind, who have seeds and plants growing in their gardens due to Tony’s love and passion. Plants which need this incessant rain to flourish and bloom.  The grey ‘scotch mist’ which has hung around for days, continues, occasionally turning into sleety, dirty rain drops necessitating a constant need for windscreen wipers.  The car is filthy.  The grime from the rear windscreen wiper builds up either side of the blade creating my rear window on a murky world.

So knowing I’m too late to make my evening meeting and with eyes tired from driving in the rain, I decide to break my journey.  It’s a very slight detour to Bicester village.  This used to be an outlet centre ( I know this as we used to live 6 miles away when it originally opened).  But now it’s become a consumers designer dream world, stuffed full of Bond Street type stores, all with goods at still vastly inflated prices, masquerading as bargains.  I don’t know why I thought stopping here would be a good idea.  Every time I visit now I become more depressed; by the obscene prices for big name brands, and by the gobbling tourists, arms full of crinkly cardboard bags who don’t seem to be enjoying the experience as they are so intent on grabbing the next item on offer.

On the plus side, it’s very prettily decked in Christmas lights, all twinkling in the dark, cool, night air and it has some of the very best public conveniences of any retail park I’ve ever visited. And I’ve been to a few retail parks in my time!

Empty handed and still contemplative, I’m heading homewards when right next door to Bicester village,  I spot what is quite possibly the largest ever supermarket superstore I’ve ever seen.  90,000 sq feet of retail space waiting to be explored.  Naturally, I stop and park up.  Walking inside this mecca of grocery and consumer goods, I am at once confused and overwhelmed.  I’m transported back to Kampala where, prior to Shoprite and the march of the South African supermarkets, our food choices came from the market, the grocery store in Kisimenti, or driving over the other side of town to visit Quality Cuts, the Belgian butcher serving fresh meat and cheese, European style.  Food quality is good in Kampala but in my early days there, choice was limited.  And food from the UK was rare.  I once called Craig in the office to excitedly tell him I had bought a Frey Bentos pie for tea.  This ‘delicacy’ being a rare find. Needless to say, this was a one time purchase.

So ending up in this Bicester superstore, reminds of a Christmas past, when I flew from Uganda back to ‘Blighty’. On my way to friends in Cheltenham, I stopped off at a supermarket to pick up some essential supplies.  But I left empty-handed, as I got to the cereal aisle and became so bewildered by the amount of choice, that I stood silently stupefied in front of the garishly coloured, neatly stacked boxes.  The entire aisle was cereal – both sides – stacked high.  It was just too much contrast from where I had come from.

When you spend time in places where people have very little, you learn to appreciate, and feel fortunate as well as guilty, about the vast amount that we have.  However,  having now been back in the UK for some time, and living in a very affluent and privileged part of England, I forget. Until days like today.

Today I remember, again, what’s important.  Having passions for activities and things which are meaningful for me. Taking time to show friends they are cherished.  Developing and nurturing my communities of shared interests.  Treading gently on this earth and, paying attention to the moments of learning.

Living in our world, at this time of year, it can be too easy to buy fancy presents to show people you care.  But the gift of time and genuine attention, of listening, of love, it’s priceless.

 

The Poster ‘child’ and Poo

It is almost a year since my cancer surgery and knowing it is mouth cancer awareness month, I am chatting to my consultant surgeon at my 6 weekly consultation,  about what he does to raise awareness.  He shares some of his experiences with running free clinics and receiving ‘dogs abuse’ from Doctors who think he is scaremongering, and of the difficulties he faces getting the support required to set these up.  As part of this conversation I casually offer to support him in any of his efforts.

Less than a week later, he leaves a message on my answer phone.  BBC South are interested on doing a piece on mouth cancer and want a patients perspective.  Will I do it?  After a couple of conversations with the communications department of the Basingstoke Health Trust and a BBC producer,  I find myself in front of a TV camera.

blue-lips-mouth-cancer-awareness-1144x762Up to this point, I have been fairly quiet about my cancer.  I haven’t been deliberately hiding it, I know I need to take the time to get physically better, learn from and work through the changes that it brings and to embrace my new sense of self and identity.  I also know that I need to find a new job in the New Year  and that finding a new role is likely to be more problematic  with a recent cancer diagnosis and recovery story tagging along behind me.

So, I take time, writing this blog, going to all the various treatment and support groups, having fun, hanging out and welcoming support from my tribe of great friends while focusing on getting better.

tah-dah-1In one morning, I blow the control and management of my personal experiences right out the water.   I run starkers, out of the closet with a primal Tah Dah!!

It’s a positive and a negative being a communications expert in situations like these.  What is the message and the hook that will have people stop making tea and look at the screen? How will this message be memorable in 30 seconds?  What will make people do something different  from what they did before (i.e) stop ignoring persistent mouth and neck problems.  It is with a dawning sense of  dread, that I realise I need to show my “new” tongue and my scars to the good folks of the South of England, to wake them up to hopefully take preventative action.  And  not even my lovely Craig gets to see my tongue in private.

I am clear about my message – “It could be you” is the hook.  I want the audience to know that I don’t qualify in any of the so-called factors they say generates mouth cancer.  As cases are on the increase and more research needs to be done on the causal factors – don’t be lulled into thinking “it won’t be me”.

They edit it, of course, so the message is not so direct and I get quite cross when they find a loquacious but officious dentist in Birmingham to come on after my segment and talk about all the old traditional factors surrounding mouth cancer.  Grrr.

radio-imageBut as I have also agreed to do a live interview on Radio Berkshire the following morning, I know I have another opportunity.  Radio as a medium is very different to TV.  A verbal rather than visual hook is required to get people to stop and think.  My story becomes real when I talk about telling Roscoe, my then 11 year old son, that I have cancer.  Parents are likely to shudder at the thought of having to do this. And everyone can imagine what it would feel like, having to tell loved ones such horrible news.  Hopefully this has people booking regular visits to their dentist.

I then go  ‘live’ on Facebook  to drum up more awareness.  Not only am I now naked and out the closet, I am swinging from the door!

I shut my laptop, pack my bag and get ready to support a girlfriend with a values in action workshop.  In my handbag is a letter, the contents of which I have not shared with anyone.

It states that my recent breast mammogram results require me to have another mammogram and consultation with a doctor in 48 hours at the Royal Country Hospital in Winchester.

Shit happens doesn’t it?

star-jumpsSurely after the mouth cancer and the removal of half my thyroid, I am done for the year.  Surely it is my turn to be well after all the healthy living, breathing techniques, positive mind work, the alternative therapies, vitamins and new knowledge.  I convince myself it is nothing, they are being extra careful with me because of my recent cancer adventure.

So I waltz into the Hospital, smiling and positive, up until my left boob is being “squashed and squeezed” and the response to a casual question to the lovely radiographer, is ringing in my ears.  She is not able to tell me what is wrong, I need to see the Doctor.

I don’t think I have ever felt fear like this before.  Like a menopausal heat wave it works its way from the top of my head to the soles of my feet in a millisecond. And I can’t move as my boob is stuck in a vice!  Yup, out of the closet, Tah Dah! now really quite naked and very exposed.

radiography-image

Sent to the waiting room for 20 minutes, I decide to pop to the bathroom to do some deep breathing techniques and star jumps (quite tricky in a small space and in reality more like a hop with two wildly failing arms).  A bit puffed, I turn to face the door and see a poster all about poo.  It seems quite apt, in this moment, to be looking at various shapes of poo and what they mean.  So in the interests of sharing my new knowledge I take a picture.

image

Knowledge and a bit of levity are often the paddles you need when the shit creek appears.  And the ridiculousness of the situation, trying to do star jumps in a tiny toilet with a poo poster on the door, makes me laugh out loud.

Shortly afterwards, the Doctor shows me, on the small screen, my breast lump which thankfully turns out to be a cyst.  With the help of a sonogram and a ‘Dot-Dot’ large ‘Dot-Dot’ needle, it is aspirated and gone.  More mammograms confirm all is good and I step out on the street.

It’s been quite a 48 hours.

I head home for hugs with my boys.

Saying ‘Aaagh’

Today I went for my first ever Breast mammogram.  I am constantly amazed by how fortunate we are to have our National Health Service and for this breast screening to be free.  However, it turns out that many women do not turn up to the screening service, particularly the younger age group (the NHS is now offering screening services for a randomised group of women aged between  46 and 50).

pink breast cancer awareness ribbon
pink breast cancer awareness ribbon
This 6 minute test is undertaken by highly trained, caring and compassionate women, normally in a location where it’s easy to park. It’s so efficient I was in and out of the car-park within 30 minutes.  Breast cancer awareness is everywhere.  From Hollywood superstars, to business leaders, friends, Mums, daughters – the proliferation of pink cancer ribbons and fund-raising is huge. As is, unfortunately, the number of people we know and care about being affected by it.  Why take the risk and skip your Mammogram?  It’s 6 minutes of ‘uncomfortableness’, yet potentially  months and years of peace of mind.

So if people don’t turn up for mammograms for a cancer that is so widely known and prevalent, just consider the Herculean task of waking people up to the potential of mouth cancer.

In the UK, November is designated mouth cancer awareness month.

mouth-cancer-ribbon

Mouth cancer is on the increase;  by 39% in the UK in the last decade and by 92% since the 1970’s.  In my small friendship circle alone,  I know 3 other women who’ve experienced it and one lovely, gentle man, who has died of it. More people die from mouth cancer than cervical cancer and testicular cancer combined. Last week my dentist told me she’s just referred a 19 year old teenage boy showing all the signs of mouth cancer.

sam_0493This is not a cancer to be taken lightly.  Its effects are more visible and potentially more debilitating than many others.  Removing oral cancer, if it’s caught in time, can leave long-lasting affects on the speech and swallow function, on the function of the jaw and voice box, on neck and shoulder movement and additionally – in my case at least – a significant psychological impact created by  extensive scarring  to the mouth, neck, arm and stomach and having to learn to speak differently. img_6937 In many cases, mouth cancer survivors have to cope with developing a new self-identity.

Many of the populace – if they happen to be aware about mouth cancer at all –  figure it’s not going to happen to them.  Particularly if they don’t smoke, drink only occasionally, eat a balanced, healthy diet, have never had the HPV virus, are female, are fit and healthy and are under 50.

I was one of those people.

These factors were the reason that my dentist discounted mouth cancer for 4 months – and she is a great dentist.  Today,  as I type, a 47-year-old, fit, healthy and gorgeous woman is undergoing a 10+ hour operation because  4 different dentists misdiagnosed her mouth ulcer as being caused by a wisdom tooth.

mouth-cancer-check-2016-a4-downloadWe need to take responsibility for our own mouths.  Pay attention to ulcers which have not healed within three weeks, red and white patches in the mouth or any unusual lumps or swellings in the mouth, head and neck area.  Anything unusual in your mouth, anything that changes and stays changed for more than 3 weeks – go and see your dentist.  Specifically tell them you want to discount mouth cancer.  Put that thought in their head before they examine you so it’s in their conscious brain.

Here is what to do to check your mouth – it will take you less than a minute.  Do this in good light and pay attention to any changes

8-step-oral-cancer-screening

This picture is my mouth cancer, the day before my operation.img_6703 It doesn’t look serious does it?  But it was already a stage 2/3 cancer (I didn’t know this at the time) as it had spread into a lymph node.

As part of my monthly check up I discuss this lack of awareness with my Maxillofacial consultant surgeon.  He does all he can to raise awareness and catch people early.  He doesn’t want to sit in his consulting room, face a frightened patient and say “you’ve got cancer”.  He’d like to watch his young son play his football matches and read him bedtime stories, instead of standing in an operating room for over 12 hours conducting microscopic, intricate surgery to remove cancers that could have been treated differently if caught earlier.  His dedication is inspiring, admirable and his frustration palpable. I always know  when he pushes back his chair and runs his fingers over his head,  he’s stressed.  I’ve seen him do this enough times in the past year to know this pattern.

mouth cancer risk factors
mouth cancer risk factors
So many people have asked me, what causes mouth cancer.  The official line is smoking increases your chances as does heavy drinking.  If you’re overweight, eat rubbish, don’t exercise, have the HPV virus, are over 50 and male, you’re much more likely to be in the target zone.

But given none of this applies to me, I’m left with seeking different answers.  So here is my theory, based on my extensive reading and research over the last year.  In addition to the list above, pay attention if you are:

  • Stressed, and have been stressed for a long period of time;
  • Heading towards burnout (including feeling irritable, unpredictable, isolated, frustrated, confrontational, irrational, incoherent, always tired, eating or drinking more);
  • Hold, or have held, a mobile phone to your face and ear for over 20 minutes for long periods of time;
  • Grow up in a household with parents who are heavy smokers;
  • Spend, or spent time in, smoky atmospheres even though you have never smoked yourself.

Make a date with your mouth each week. Consider this to be an essential part of your personal insurance policy for the years ahead. 

May  you, and your loved ones, live long, happy, healthy, productive, cancer-free lives.

And may Mike get to spend more time with Henry.

family-playing-football-beach-summer-day-38192616

 

 

 

 

 

 

Fakery

During an unusual spot of Motherly baking today, I burn my arm.  While I’m calmly reaching up for the burn cream, fetching the first aid kit from the bathroom and applying the dressing with one hand, Roscoe enquires, while sitting on a chair,  if I’m okay.  mother-and-cook-book“Well, I’ve just burned my arm on the oven door”.  His response?  “Again? That’s just careless”.    During my suppressed, and combined, snorts of hurt and irritation, it strikes me that once more I am faking it.  That what I’d really like to do is run, banshee-style, round the kitchen while waving my reddening arm and screaming rude words, at decibels so loud the neighbours can hear.

It makes me laugh to consider how I’ve used fakery in daily life.   Lots of us have Facebook lives, the ones where our personal brand takes on an idealised hue.  In my case I tend to post photographs of when we’re on holiday, when Roscoe is either acting goofy, looking handsome or lovingly at his adoring Mother. dsc_2981 Or the occasions where Craig is laughing so uninhibitedly free,  I can hear it through the image.  Sometimes I post photographs of friends and cocktails or shots, or friends with cocktails and shots.  The point is if you were trying to figure out who I am and what I’m like by looking at my Facebook posts,  you would think I was always travelling, exploring, having fun.  And yes, I do experience all of this but real life is not as colourful or varied or exciting as my Facebook posts would have you believe.

gerber-babyI have a girlfriend who occasionally sends photos of her intensely cute newborn son.  Her response to the comment of “he’s always such a smiley baby” is to remind us that she’s hardly likely to be posting photos of him screaming and looking like a demented demon child.  And boy is this the truth.  Although, I must confess to laughing inside when everybody would look at a newborn Roscoe and say “ooh, he’s so beautiful”   – particularly as both parties knew he was a shockingly ugly baby.  Fakery in these wacky hormonal situations, is probably the safest option.  Thankfully by 3 months, he was a stunning, if noisy, cherub, so much so that we were once tailed in New York by a bloke who believed that Roscoe was the real-life Gerber baby.

And then I think about my trips to the hairdresser.  Okay, so he displays all the physique, muscles and charm of his other job, as a professional ice hockey player, but why do I need to put on makeup before I go?  I don’t remotely harbour any nefarious thoughts about him but my vanity and ego will not let me turn up “Au natural”.  Especially as once he’s cut and fiddled with my hair and then dried it to perfection, it  doesn’t match the ageing face unless there is a previously applied smidge of lipstick and a wand waft of mascara.

Then there are the visits to the cancer consultant.  Where I’m so intent on being the best patient, the one he smiles benignly at because I’m making such good progress, that I forget to tell him about the jaw pain and the scar tissue battle and the fizzy tongue.

And when I’m in professional situations,  I sometimes pretend to be something I’m not feeling at the time.   When I’ve a head full of cotton wool and a mouth to match, I’m up extra early to carefully apply the face paint, to make last-minute changes to the outfit planned and  to work through the witty one liners to “gosh, you’re looking really good”  My favoured response is “thanks, its amazing what a spot of cancer can do to a person”.  I have sat in meetings feeling rising panic, when nothing said seems to make any sense.  I have belly breathed through prolonged senior level bullying with personal attacks on my core identity, not on the job I’m doing, and still managed to act with integrity and remain professional.  I’ve held it together when the task ahead seems impossible and my team need me to provide direction, when inwardly, in that moment, I have no clue but my unshakeable belief that together, we will make it work.   I have walked into meetings not knowing what I’m going to say but open my mouth to sound credible and articulate.  I’ve used face paint and office wear like a suit of armour and act it out.  And it works.  Because in truth,  very few take the time to look beyond the superficial.  We are all caught up in busy lives, 30 second snapshots, caught in our beliefs and unconscious bias’ which filter our thoughts and vision.    I know, if you can act confident, sound confident, look confident, you will end up being confident.  It’s afterwards you can be surprised and shocked at what you’ve achieved.

2016 is the year where I have honed my ability to pretend.  Outwardly all can be sorted, while inside I am ripped and dripping in angst and fear so rich I can taste it.  The consultant call to the beach, to tell me the biopsy was not good news, and after a 10 week wait, waking to the inevitability of my right thyroid gone, tested my resolve but loosened my vanity.  What’s another neck scar to add to the collection?! img_0754 It’s become farcical to worry about something so trivial.  And besides I now know how to fake looking well.  Nothing that a scarf , a spot of war paint and some flicky hair can’t sort.

The gift of my cancer is to have given me time to cast my eye inward. To explore who and what I am and what I stand for.  And it turns out that this is now where the real challenges lie.

Loving and believing and trusting in myself so I no longer need to pretend.

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In sickness and in health

Craig and I often spend time apart – either because of work, family commitments or social engagements with friends.  For us, this is healthy, it lets us have space from each other while at the same time acting as a reminder of why we have chosen to spend our lives together.  And much as though I miss him, I look forward to these brief breaks.  So when he said he wanted to go to Scotland for a few days to see his Dad and spend some time with his old buddies, I readily agreed we should make this happen, despite, and because of, my recent surgery.

img_8734As during the past twelve months, with the exception of the inevitable work commitments, he has been at my side.  And at the same time, he has changed his job to a much higher profile role, lost his Mother and has been caught in the middle of a protracted and messy long-term sibling disagreement.  It’s no exaggeration to state his tenacity and commitment has been something of an inspiration for my recovery.

We don’t often speak of the toll on loved ones of a cancer diagnosis.  Personally, I feel it has been far harder on Craig than on me.  I see this sometimes when I catch him, unawares,  just watching me, or ‘spotifying’ our past summer holiday tunes, cooking incredibly tasty soups and stews to encourage me to eat when I’m suffering from the recurrent mouth ulcers or when he’s forgetfully wandering in and out of rooms. img_8285He has always told me daily that he loves me but now he says it with an intensity that I have no doubt of my responsibility for doing all I can to get better.  He regularly reassures me that he still finds me attractive, particularly during those days when I find my scars to be hideous or my skin-heavy tongue to be troublesome.  He encourages my forays into alternative and holistic healing, in-spite of any personal doubts.  He listens hard to my misshapen sounds and tunes out to my now atrocious singing, game fully joining in when the screeching gets too loud.  He laughs with me, and at me, when I’m being ridiculous.  He plans surprises big and small to keep me looking forward, supports my need to write this blog, sometimes correcting my grammar but often just letting it go to free my voice. He has gone from sleeping the sleep of the dead to waking at every sound and now seems incapable of sleeping any longer than 6 hours a night.  He  juggles his work commitments to accompany me to every hospital appointment and consultant review and apart from my banning him from coming to the intensive care ward, has been by my side every hospital day while pasting on his brave face for Roscoe every evening.  I don’t know how he managed to get through the day of my 12 hour surgery and emerge still sane.  I do know from the increasing amount of grey hairs on his head and, worry lines on his face, that my diagnosis and on-going recovery has been incredibly tough on him.

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From a change perspective I am curious to know how he manages and chose my moments to ask.  It turns out he likes some rituals – like putting on the washing, organising clothing into piles of colour and texture and measuring out the soap powder (he has a mistaken belief that I have always used too much)  He finds cooking to be relaxing (washing and tidying up afterwards, less so).  He needs to get out of the house regularly otherwise he suffers from cabin fever.  Watching any kind of sport on TV is a form of escapism.  He understandably seeks more predictability and organisation than we have experienced in the past.  He needs us to take regular breaks away from home as a means of forgetting, for the moment, where we are and what we are facing.

And if I had to do it over again (and I ask the Universe to ensure this is never the case), what would I ask him to do differently?  I would ask him to get more organised support, I would insist on a therapist or counsellor for him to talk to – not because I think he needs therapy but to have someone to be brutally honest with, to not need to put on the game face but just express his  deepest fears and emotions  as a form of catharsis on the body.  I would encourage more fitness, of any sort, to help with his cortisol and adrenal levels.  I would make him take omega 3 good quality fish oil for his amygdala health and well-being.  I would ensure that his buddies invite him out more for blokey, manly activities;  golf, squash, poker, classic car gazing, banger racing – whatever men do – as unlike me he internalises and finds it hard to ask for support. img_9564 I would restrict the alcohol levels and insist on far less meat and far more vegetables, not just as a side dish but as a main meal.  I would encourage him to have more “me” time, re-join the golf club for example, and to spend more time with his mates, away from home stresses.  I would shout louder for him, for help, support and care.  I would have him go to facials and back massages so he would relax and enjoy more pampering. In short, unless he feels cared for, how can he give so much of himself without he himself becoming depleted and sick?

And now, while I have just loved my most amazing girly weekend, he has enjoyed some much-needed down time with his buddies.

So all hail  some time away from the vows, commitments and promises that we make and keep.

As we continue to live “till death us do part” with our eyes wide open and our hearts full of love.

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Falling in love

I remember the first time I got off the plane at Entebbe. It was October, the start of the rainy season, and the heat of the sun was mingling with a recent rainfall.   The smell was intoxicating, like a half-cooked clay pot mixed with the rising scent of begonia, the murrim dust burnt orange underfoot. murrim soil Entebbe.jpg This blast of heat and smell and dust blew in front of me; the noise, aroma and sensation, an enticing beckoning into a love affair that has never left.

I have waited nearly 12 years to share this with my child.  Wanting him to be old enough, aware enough, to build his own relationship with this special place.  We chose South Africa, “Africa light” as I’m apt to describe it, for a slew of reasons, all of which were rational and pragmatic.  We decided to visit in Winter, better to see the wildlife on safari, less mosquito’s, less tourists.  We chose a mix of African bush and city to provide contrast and maintain interest, carefully selecting the places to stay.

And the first few days were magical – all I could have wished for.  I watched his eyes widen img_7427at the sight of elephants so close you could smell their breath, at lions lying feet away replete from a kill, at rhinos locking horns in violent play-fight, at hungry hyena and wild dog scrapping, at giraffes fixing him with their beautiful hooded eyes before sauntering away.img_7855  I saw him listen to every word of Stu the safari guide and George our spotter.  He playfully gave himself into the music and culture delighting the staff at Etali Lodge with his desire to learn their songs and participate in their sounds. He jumped in deep;  watching lizard, zebra, bush buck and warthog from the depths of our plunge-pool and singing loudly and with great abandon in the outdoor shower.  This is a happy child, falling in love with my Africa.

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And then we arrive in Cape Town and it changes.  The city itself is beyond recollection and I keenly feel what Elizabeth Marx terms “reverse culture shock“.  It is at once familiar yet strangely alien.  I search for Africa and see the successful commercialisation of an international city.  Small family owned restaurants are now large, bland, international affairs.my-citi-bus-waterfront-1  In revolt we purchase a MyCiti card and take to travelling in and around the city on local buses, desperate to retain a link to the culture that made this place so unique.  We encounter slivers of this, just enough to keep searching, but it is becoming more futile by the hour.  To make it worse, Roscoe keeps talking of Madikwe and us returning there and it is obvious that the Mother city has only attracted his consumerism and not his heart.

So we headed off to the Cape Winelands, basing ourselves in Franschhoek the Huguenot town renowned for its gastronomic delights, engulfed by a plethora of high-quality vineyards and nestled in the spectacular Franschhoek valley.  img_8425
This is the home of La Petite Ferme, the award-winning, family run vineyard where Craig and I used to stay in our young and carefree days.  Only this is currently closed, having been sold, and is now undergoing renovations, no doubt to make it bigger, better and more commercially lucrative than before.  Everywhere we go, we see the march of touristic progress from the penguins sidewalk at Simons Town to the rise of new hotels in the middle of Hermanus.  The charm and culture appears to be ebbing away and it bruises my soul.  Of course I have no right to wish stagnation on a country that so desperately needs the tourist dollar, no right to expect the culture to be wrapped in cotton wool and preserved for my child to experience.  I would not want this place, this continent. to do anything but rise and prosper and flourish. img_7194 But to see it through my child’s eyes – we could be anywhere in Europe, America, Canada, Australia – this is not Africa, this homogeneity choking a culture so colourful and vibrant.

And yet, we take a thread of hope and a promise of tomorrow, back with us.  For Franschhoek also hosts a number of small boutique art galleries.  And on day one of our visit we fall in love with a painting by a local artist called Katherine Wood.  It’s an exorbitant cost but it beckons us back each day to gaze at its sweeping skyline and discuss how it makes us feel, think, breathe.  We are in the in-between land of knowing but not knowing, reminded that life is fleeting and ephemeral.  This art, it calls to us and commonsense and pragmatism fade and disappear in its incessant need to be heard.

We buy hope and dreams, future not past. And the crate arrives three weeks later, massive in size, it alone making a statement that refuses to be ignored.

We will gaze at this painting, and its companion piece,  to the end of our days.  I too have succumbed to commercialism and magic.  Yes, Africa remains within me, a concept, a promise, a never-ending love affair.

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Certainty

The concept of certainty often taxes my grey matter.

Certainty challenges change.  When searching for certainty, I look for stability, assurance, guarantees.

Humans can’t help looking for consistency, for security.  It is as natural as breathing.

So when change happens we feel nervous, uncertain.  We search for patterns and behaviours that help us feel secure.  Sometimes we do this consciously, often it’s sub conscious or “other conscious”  – a new term I was introduced to last week.


In terms of change at work, we often don’t like it but in my experience, there are several options:

1. I don’t like this but I’m interested to see/hear what will happen next.

2. I don’t like this, I’m not going to stay.

3. I don’t like this but I have little option but to put up with it.

4. I don’t like this so I’m going to oppose it all the way and try to stop it from happening.

5. I don’t like this so I’m going to show them an alternative way.

Rarely have I experienced someone rushing towards me, arms outstretched in greeting, yelling, ” Hurrah,  we’re going to change”!!!

Working with change and uncertainty is challenging because it affects our basic need of knowing we can provide for our families.

I think about this in terms of the Mothers in Aleppo.  The nurturors of the innocents, the oppressed and the oppressors.

These Mothers face uncertainty and change beyond imagining.  This, the oldest city in the world and dominated by its great citadel, was once a thriving, bustling city of souks and khans and stuffed full of extraordinary archeological treasure and culture; now it lies in ruins in the dust. Where allowing your children to go and play, as children the world over all want to do, may mean you never see them again.   I listen to a radio report from Krishnan Guru-Murthy,  who witnesses the immediate aftermath of an airstrike into an already shelled building where three brothers are playing.  Two brothers suffering from shock, stand mute  while their Mother rushes in and picks up her third son, cradling his still warm life form close to her. She begins to rock and wail, crying “he is not going for burial today”.  “He is not going for burial today”.  The men on the scene try to encourage her to let him go.  Mohammed, who is forever seven, Mohammed who is forever loved, Mohammed who moments ago was playing with his brothers, lies dead in her arms.

imageThe siege of Aleppo means these Mothers don’t know from day to day, hours to hour, if their children will survive.  Will they die from a shell strike from somewhere and someone unknown, or from a sniper’s bullet from a fighter hiding out in this atrocity of a city? Perhaps they will go more slowly, in a hospital which has no drugs or supplies to stop their piercing pain, their blood from flowing, their screams of agony.  Or maybe death will come from malnutrition as no food has been allowed to get into the city for months and months.  These Mothers, like all Mothers the world over, fret about the basics. “Is my child safe and secure?”  “Does my child have food and water to survive?”  “Can I provide for my child?”  As any psychologist will tell you, without these basics, what we know, or think we know, counts for nothing.  We are reduced to our elemental selves.  Humanity and human are two different concepts when our backs are so far to the wall we are leaving our shadows imprinted in the brickwork.

A different radio report from Aleppo,  responding to the question of “what do you want to be when you are older?”, garners the response “I don’t plan; I don’t think I will survive”.  She is twelve.

So, in this context, I refuse to allow my body and mind to be bowed by any continued uncertainty over my health.  I now have support at work, and my tribe and husband continue to be amazing.  After meeting the consultant last week, and with a date for my next operation now set, we hit the internet and phone, frenetically  pack and board the plane.

Yes, I am living with a level of uncertainty.  But my basics and much, much more are being met and often exceeded.

So I suggest we all live life to the best of our ability. Let’s cherish the moments of calm and knowing. And consider those who have challenges greater than our own. 

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Tomorrow

It’s now less than 24 hours to go. I am being industrious, keeping busy, busy, busy.  The house is in uproar.

Cutlery trays are cleaned and repacked, the cutlery lying within is gleaming with polish, glinting even in the grey drizzle of the day.  The shoe store is cleaned out – the 12 pairs of Roscoe’s various sports and school shoes (he has grown  one and a half sizes this summer..ouch!)  are ready  to accompany the two black bin bags of his now too small clothes.  Craig’s clothes are tidily arranged into colour, shape and form, ready for him to muck up the new order within 48 hours. Soft linen drawers stuffed full of napkins and table cloths are sorted and rearranged, towels lie askew in the bathroom floor waiting to be folded and reorganised in the empty cupboards.

Grocery shopping has been done, menus planned for the week.  Shoes have been re-heeled, dry cleaning dropped off.  Roscoe is now with a friend, the constant requirement for him to pack and re-pack is not bothering him.  He is full of excitement that fresh from the fun he had with his buddy Ned in Ibiza,IMG_8751 a rapid turnaround to visit Cupar, Fife, so to be with his Aunties, he is now having fun with James, another wee mate from school.  He is worrying about South Africa and the mosquitoes, sharks and potentially scary locals who have little to lose in their daily chore of survival.  I am worrying about South Africa for different reasons but I don’t tell him this, only mentioning that his Dad and I wonder if we should wait until it’s warm again.  Truth is, this is all on hold. We have not organised Rand, accommodation, car hire, internal flights, packing.  I have not looked out our travel insurance, avoiding any jinx of fortunes.  We have booked no more, done nothing else. Not until we know tomorrow’s news.

These past three weeks have been tricky.  There have been moments of blissful forgetfulness in the joy of digging toes into warm sand as the sea pulls me forward, of talking future plans with Julia,IMG_8808 of sharing sunsets and gin,  of yelling at the moon
and doing yoga while watching Es Vedra.

There has been curiousity particularly in the tour of St Leonard’s in St Andrews by the delightful outgoing Head of History.  This curiousity is heightened when we stand in the (haunted) bed chamber of IMG_9473Mary Queen of Scots as the dog lies whimpering at our feet.  As the new Head of History, Auntie Jan’s classroom comes with its own balcony and turret and is complete with spectacular views over the sands of St Andrews.  I imagine Roscoe learning there, history wound in history as the chalk marks and scratches on the turret walls attest.  IMG_9509It’s not the place for a child of faint heart but a warrior child will progress beyond the stone grey walls and into the world to make their mark.  It’s a place of boy-men and female heroines.  A place which has all the potential to shape my child into the man he will become.  A place over 450 miles away…

Friday, I’m picked up by some lovely girlfriends and driven to a local spa where we spend the day sorting out the world and its woes, gossiping, having treatments and then hanging out at the bar.  I wasn’t thinking about tomorrow,  much, and only when asked.  I don’t ponder, its okay to make some remark or comment which allows the conversation to move onto more jocund topics.

Saturday arrives and with no child and no football pitch requiring a consenting adult to stand on the sidelines, biting tongue and shivering in the wind, we can make our plans unfettered.  We have a  true middle-aged moment and decide to have a National Trust day out at Kingston Lacy.  We forget about tomorrow as we stroll around the house, gazing at the vast collection of sculpture, fine art, architecture and paintings on display.  I stand transfixed at the most Marchesaexquisite Rubens of Marchesa Maria Serra Pallavincino.   I can almost touch the silk of her dress brought to life by the skill of his brush.  So much to see and hear, so much to take in and understand, by the time we reached the Egyptian room I am done in and need the respite of the garden IMG_9543to allow my mind to slowly absorb the visual feast of art.

The Bankes family, who previously owned Kingston Lacey, originated from Corfe Castle further into Dorset, so we head down and I play memory games of happier BG times as we used to be sent here to learn about the rocks and geology of the Jurassic coast.  Replete with fabulous seafood we gaze at the blush pink of the sun as it set over the castle ruins.  IMG_9562On Sunday we reunite with the boy and to celebrate drive from Southampton to Portsmouth to have lunch by the water and watch the boats.  But all this driving allows the mind to roam free and the stress bubbles underneath, catching us all by surprise as we yell about where to park.  We are thinking about tomorrow while trying to stay in the day.

Now it’s today.  And tomorrow is tomorrow.  The big day.  The day of answers to questions.  When uncertainty is removed and replaced by who knows what.  I wonder if I will long for the ignorance of this moment or will I sigh relief.

In the meantime I have a towel cupboard to sort, an outfit to plan and a gin to drink!

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